Some promised pics

That's all for now.  Will try to pick some good videos for later.  Enjoy!

The BIG Update

Ok folks.  Know it's been FOREVER since an update but things have been insanely busy around our place.  But, what it all boils down to is that as of December 1, 2011 @ 8:37 AM CST Wesley Job Szaloy is ALL OURS!!!!  We had our hearing over the phone to a courtroom in Florida and the Judge said she was happy to sign him over to us for good! 

He is doing very well.  He is still on oxygen, but improving.  We took him to Houston to Texas Children's hospital to run a 4 hr test.  Basically, they take him off oxygen and monitor him for that 4 hr duration and see how he does.  He ate, slept and fussed a little but during that time and had no major desaturation events.  We thought he was done but the Dr. said the results showed some desaturation still that they felt warranted him staying on oxygen for a while yet.  They did however give us a home pulse-ox machine so that we can monitor his oxygen levels ourselves.  We are expected to be able to finish weaning him off of oxygen by the time we take him back for a follow up in May next year.

He has been sleeping through the night for over a month.  Sometimes even until 9 or later!!  He has recently really started to coo, laugh and smile more and more.  He's finding new sounds every day and ever so happy!  His hair has been growing back in on the top of his head and he's looking more and more handsome all the time. 

The internet is not cooperating with uploads at the moment, so no pics at the second.  Once can get that going our way we'll get some on here soon as we can.  Thanks everybody for everything again.  Sorry again it's been so long, and pics will be soon!!

-Mike

Baby's got his blue jeans on!

Sorry there hasn't been anything folks. Anyone with children understands the delays that are involved. We have all intentions of giving a full update soon with LOTS of pics. Here's a couple teasers in the meantime. 
Mike

Don't give up on us folks! We will b back! Just busy gettin settled n!

Fixin' to head out from the hotelHere at the cracker barrel in Alabama fixin' to eat...as you can see one of us is already eating.

Headed out soon as sonic  gets us our food! YEEEEE-HAW!!!!

Some cuteness for all to see

IT WORKED!!!

Have been trying to figure out how to post pics from the cell phone, as you can see from the previous post it worked!!  Anyhow, just a quick note to say that we have been cleared to leave the state of Florida!  Miranda got the phone call today, so soon as we're ready we'll be headed back to Texas!!  Ahhhhhhh...home sweet home.  I'll be flying back tomorrow, then we have a follow up appointment for Wek on Thursday morning.  Then we'll start making our way back.  Sure want to again thank all of our new friends we have made in Florida.  Y'alls hospitality and generousity has been beyond measure and we can't thank any of y'all enough.  It's so encouraging to travel so far from home and still see God's work in full measure.  Gives a person a little hope.  That's about all for now. 

-Mike

This is only a test...

Just real quick....

One month old today!....and his adorable orange hair is starting to fall out ="(. But I guess he's still cute ;P. Im gettin a little more coordinated with all his equipment that must follow us everywhere we go....yes even just to go back and get the diaper we forgot. We've only experience one false alarm and one real alarm. The real one was him trying unsuccessfully to breath. That was our first night. Otherwise we r doin good and enjoying exceptional care from the DuBose family here n St. Cloud! Thanks y'all! And thanks everybody else for all the much needed prayers and well wishes!

Sorry! Yes we're alive, ok, & n St. Cloud. Just no real sleep yet so the communication part of my brain has been shut dn in consideration

Frrreeeeeeeeeeedddooooooommmmmmm!!!!!!!!!!!

Everybody cross your fingers, hold your breath and say a prayer. We are supposed to b released tomorrow at 2! We have to wait for some paperwork to b signed by the adoption agency but Lord willin we'll b outta here tomorrow! Yes his is leaving with oxygen. We had our training today and, although I had a migraine, I think I'll b able to remember everything. His lungs are under developed and the slightest germ can cause severe pneumonia. He will out grow it with hopefully little more than a higher likelihood of asthma as a result. In the mean time it is imperative that we all pitch in to keep Wesley safe! He can't b around the "sniffles" or any contagious respiratory or pulmonary illness. It was also highly stressed by the pulmonolgist that everyone who wants to hold or touch Wesley much first was thoroughly (they recommend the length of time it takes to sing happy birthday) then use hand sanitizer. It is an inconvenience, I know (they make us scrub for 3min evertime we come in the NICU), but we don't want another hospital stay! This is for as long as he's on oxygen. I'm sure you all feel as strongly about Wesley's health as I do, loving him the way you do, so please help me to remind everyone to wash before touching and be stingy with their sniffles!

We still have to stay in Florida til we get permission to leave the state with him. It can take up to 10 business days. We will b staying with friends n St. Cloud. So, all our Florida friends (folks from Texas too if y'all r n the neighborhood) please come by and visit us (if you're not sick)!!!!!! Everyone has been so wonderful and I definitely want to visit as much as we can before we go!!! Thanks everybody for taking such good care of us!!!

Ps. Please forgive all the typos! Obviously texting to the blog does not work as intended so I have to do this through the website from my phone. The website was not designed for use on a mobile device so most of the time I can't see what I'mtyping! I can go back and look at what I have typed but it is virtually impossible to edit that way! Highly inconvenient! Thanks for ur patience. ;)

Prepare for the last of the cuteness

Welp, daddy's going back to Texas for another week so this will be the last of the pics for a little while.  Never could figure out momma's phone for posting pics, but she can at least put some info down here.  The latest is he is very close to discharge.  How close, we don't know but we have gone through some of the steps that the hospital people say is right before discharge.  He has also gone to "ad lib" feeding today, which means that he can eat what he wants, when he wants it. It's momma's discretion as it would be at home (with certain guidelines, of course). But he has been doing really well. He ate quite a bit around supper time this evening and then ate some more about an hour later, and boy was he full then! Normally he was going about 3 hrs in between feeds but was usually lookin' for it about and hour or better before hand. So, he is doing well with his feeds.  He is still on oxygen but we are supposed to take a training in the morning with a company that provides oxygen for home medical needs.  They will provide the equipment and training to run it so that we can go ahead and get him on home!  Yay!  So, again thanks for all the prayers everybody and keep 'em coming. 

And, now as promised...more cuteness than you can stand (almost...)

-Mike

Three and a half mintues of cuteness...ready, GO!

Bath time!!

All bundled up

The patented Mommy taco...for use in emergencies only.

Fuzzy

He's goin on add lib feeds (eating when he wants), about to have a carseat trial (required for NICU babies to leave) and we're goin to b t

He didn't make it. :/ But he tried hard.Lasted longer this time.Just got too relaxed when he fell asleep and wouldn't take deep enough bre

Quick everyone! Just took the O2 off again for another try! Pray hard! Spread the word!

Let's try this again...

Sorry for the confusion folks. Have been posting from Miranda's phone and it's kinda hit and miss. Here's the last post following:

Well Wek got his feeding tube out last night at the midnight check. He has taken all of his bottles in stride for the past two days. In fact Momma has been having to make him take a break because he's been trying to suck them down so fast! The goal is for him to take his bottle (which is currently in the amount of a hair over 2 oz.) in around 15 to 20 minutes. If we would let him he'd just about get it done in just over 5 on some of them! So, he's doing well with feeding and now we just have to get his oxygen stuff figured out. Thanks for all the thoughts and prayers everyone and keep em coming for little Wek!

-Mike

Well Wek got his feeding tube out last night at the midnight check. He has taken all of his bottles in stride for the past two days. In fa

Quick everybody! Start praying! The nurse just said if Wesley takes all his bottles tonight, they will take out the feeding tube tomorrow!

Didn't do well off the oxygen. They tried him for a min while i was gone to get a hair cut. Mike said he had just finished eating, was wor

And nowwwww....

My new jammies!

Pictures!! I know everybody has been wanting them and here you go folks! Mommy's figured out how to post from her phone but due to technical difficulties have not been able to post pics (supposed to be able to but no luck yet).

A quick update: he has been taking his bottles like a little champ! He didn't quite finish his noon feed but has taken all the rest today with stride. Asked a RT about his oxygen tonight and she said they may try to take it off tomorrow. He seems to be doing really well and his weight just came in at 6 lbs 14 ozs! He's being a very big boy and you can tell he's ready to go home to Texas!

So, as promised here they are!!

-Mike